Posted by: jruthkelly | March 29, 2012

One Foot, then . . .

the other. I hear this is good for progress. But I’m finding, once again, that sometimes progress is one foot, then the other up on couch for an hour while the body gets back in sync with my dreams. Or is it my dreams get back in sync with my body? In any case, overload and CFS beg a re-visiting of what is defined as success. I sit back and ponder the different comments and input I’ve had over the years regarding this chronic struggle. Some saying I got better when I quit checking my temp (as if I do this often) when what happened is this: I gave up outwardly showing my effort to figure out what was wrong; I popped 8 aspirin a day and downed 6 cups of coffee and crashed for hours on the weekend. Those were the really irresponsible years back in my 20s when the income was mostly on me and the former hubby was in school full-time and I was telling myself it would all pay off, my turn would come. Now I can eat all the right things consistently and have horrible days consistently. I’m good friends with Stevia. I adore raw veggies. I’d rather go hungry than eat McDonald’s. Somewhere between my 20s and now I had good years with this illness. Even eating badly, and thriving within the restrictions of CFS; running, working out, lifting heavy objects, planting my garden. It’s a bit insane. So.

This monkey got no rhyme or reason ‘cept “hey, you livin’ a bit much now, I’ll show you!” Or “hey, you laid low and I’m still gonna kick you hard today.” So, there it is. Another great tidbit useless to me: “Good boundaries help!” Righto. Good boundaries don’t help. I can, as stated previously, have a superb run of perfect boundaries (you know, like when I tell my kids they can have their emotional breakthrough at 10pm without me because I have a schedule and their soul work just has to wait. *sarcasm alert*) and still find myself kicked around by an unpredictable run of fever, joint pain, muscle pain/weakness surreal and oh did I mention short-term memory loss? I sound like I’m whining. I’m not. I’m just angsty. Supplements get old. Repercussions for holding a baby when I use to be able to do Teresa Tapp’s hoedowns and workout while running a low-grade fever and chasing a 4 year old yeah not all at once, mind you. And you don’t intentionally do things while running a fever (ok, not usually. sometimes you just do it because you’re it and 3 kids and) See, go ask the thoroughly boiled frog if he noticed the water getting warmer…

You know, I’m not happy about this nasty “syndrome” today.

And so I must insert the positive attitude now. Right? Wrong. I get to be in this frustration fully and know, accept, believe that this cycle will burn itself out, the monkey will tire of toying with me and I’ll get back into a more manageable zone. It’s not “negative” to see things for what they are, to experience angst or be completely put out with useless tidbits of “holier than thou” helpfulness. People assume, arrogantly, that if you’ve had something for over 20 years it must be because you didn’t do your homework, need to cut something out of your diet and didn’t know that having good boundaries makes things better. But tell them you have lupus and they shut up. See, it’s because lupus is a “real” name of a “real” illness whereas “chronic fatigue” is just a “syndrome” and it must be in your head. I still get advice to take an anti-depressant. I may be angst-filled today but I’m not depressed and depression isn’t running the show here. I remember years of depression. And CFS wasn’t kicking my arse back then! Go figure!

So, I move from useless tidbits of information posing as “help” to what is defined as “success.” And I run to Jeff Brown for that because he doesn’t have CFS and his verbal skills are way beyond mine right now. “Surrendering to the not-knowing. Befriending confusion. Flake it til you make it. Live with the question.” I’d type up the 10 sentence rally that had me bawling like a baby with appreciation but I don’t have the energy to find it. Just let’s say that success is not defined by anyone but the individual living her life as best she can, digging in the dirt of her shadow, becoming more and more aware, growing, honoring her soul’s code and transforming both on and off the couch (and grouch mood!).

And for all the gurus out there who really believe that airing your angst is a nowhere game all I can say is BAH! It must get OUT. Living in angst perpetually? Groucho all the time? God no. But this moment, man, I’m stomping on the inside and growling at this illness while my higher self chuckles, knowing that in 5 minutes I’ll loosen every muscle and surrender. And the gratitude never went anywhere, folks. We aren’t either/or mechanisms of assembly-line productivity. We are humans. We are both/and/all-at-once and when we figure that out, we’ll thrive even more, ill or not…

Back to the couch!


Responses

  1. You’ve probably already tried going gluten free. For me, it has been a Godsend. I had so many symptoms that kept coming and going till I stopped eating wheat. And this was just a year ago. My body thanks me everyday!

    Wishing you well…

    • thank you Ginny. was tested for gluten intolerance and my sensitivity/awareness of what foods affect me adversely is intensely high. gluten isn’t the problem. cfs is really its own lil monkey and if there are additional problems, then that certainly compounds things. i’ve had a few bad days in the middle of almost 3 very trying years here but i know better days are coming.

  2. This sounds so much like my life, thanks for the post, I feel less alone now

    • we’re never alone katrina but i sure can relate to feeling that way… sorry you can relate to this post!

      • No worries, it this condition called life


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