Divorce (And ME/CFS)

Finalized in 2025, but there could be confusion…

My blog has been around for ages now and throughout postings folks will encounter my mentioning of my “ex” and of being divorced. I did not officially divorce until 2025, but in my heart and mind, we were divorced since our marriage ended after years of heartache. We did separate for years. Then the economy being what it was and still is, and my battle with ME/CFS, along with the needs of our three children converged as the most defining considerations. After reflecting on what outcomes we needed to nurture, we realized we needed to move back under the same roof in order to launch our children successfully. We literally were unable to legally divorce until 2025, but we gave each other room to pursue other relationships should the opportunities arise.

When we separated, we both felt confident my illness would still give me room to work and move us along to a finalized divorce before too long. However, confidence does not cure chronic illness and my health took a nose-dive the likes of which cornered me into working from the home and limited the time I could invest even in working from the home. I went through the cycles all ME/CFS folk go through where I would establish a fairly reliable baseline of possible activity and then life would pull the rug out from under me and leave me without a baseline, clinging to the couch for weeks or months at a stretch. Divorce became an elusive though sure outcome.

ME/CFS, and any chronic illness, catapults folks into challenging and nearly impossible life situations like the one I reference here where divorce is delayed for, gulp, two decades. If you have relatives or friends suffering serious chronic illness, be there for them. See them. Affirm their challenges and do what you can to help carry the burden. Know, too, that simply “going on disability” is not often an option and has been particularly challenging for ME/CFS folks since it has taken the medical community decades and decades to simply begin to acknowledge ME/CFS as a very real and non-psychogenetic illness. What does this mean? Note the words used here: Acknowledgement of legitimacy has begun and there are still far more uninformed physicians than informed. Medical neglect devastates many of the ME/CFS population and reaches into the legal work of seeking rightful financial relief. Those deciding whether or not ME/CFS is legit enough to warrant disability benefits are influenced by those who still suffer the terrible and often willful ignorance that leads to the abandonment of millions suffering with this real and debilitating disease. So, if the medical community still needs to catch up, the legal professionals deciding disability benefits will often not legitimize the need either. Then there’s the whole issue of whether or not spousal support from divorce will provide just enough financial support to block all possibility of receiving disability. The standards are galling. Navigating the possibilities exhausts and discourages the already weary, and is often weathered without help from friends or family. Be the exception if you’re able to be and roll up your sleeves in commitment to understand, bear witness and be with those sidelined by any chronic illness. The impact of ME/CFS is insidious and extensive, isolating and obstructing lives to the point of often complete alienation. Resolving divorce and income needs with such considerations is tricky work.

Meanwhile, should you be one of those who notes the strange and seeming inconsistency of my mentioning being divorced years and years ago, and then finally declaring our actual move to legally do so in 2025, you’ve likely scratched your head in confusion. You should understand why now. Life challenges can be surreal, and though divorce can take place often times before the actual legal act, legal marital dissolution is a powerful, needful spiritual and physical work. Don’t tread lightly into protracted separation. If you can avoid the limbo of not quite married/not quite divorced without wrecking the well-being and housing of those involved, do it. But plenty of people must continue to live under the same roof due to financial impossibilities. If you’re one of those unfortunately trapped, my heart is with you. Hang in there and get help in any way you’re able to do so.

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Melt the Ice

Father God, Baba, Padre Dios…

our hearts cry out for your love & justice
to melt the ice seeking to destroy your work.
Comfort to those who mourn,
to all of our hearts in anguish
over so many losses.

Keith Porter, Jr., Renée Good,
Geraldo Lunas Campos, Víctor Manuel Díaz,
Heber Sánchez Domínguez, Parady La,
Luis Beltran Yanez Cruz,
Luis Gustavo Núñez Caceres, Alex Pretti,
Linda Davis, & those precious unnamed
are held in love & power.

Keep Oscar Vasquez Lopez safe.

#MeltTheIce

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The Things We Say

…and don’t say.

We’re compelled sometimes by forces beneath the surface and even around us that evoke reactions and responses to different events. Events include the words of others because words are events. They are the movement of energy from within one human into the world. Our words, our facial expressions, our online posts, the way we drive, the threads of communication weave their way around and through us into our world. And sometimes we look back and cringe, and we hit the delete button because we don’t want to be misunderstood. Or because of wounds unhealed, we believe that anything we say in criticism of another is somehow wrong. There are so many reactions we all manage consciously and even more unconsciously.

I know personally there are freezeframe moments of reactions to the genocide taking place in Gaza (and yes, other vital places) that I wish I could put into context, the context of who I am and what motivates different reactions at different times. I have been severely harsh at times. I called Biden and Harris both vipers because they were ignoring, as far as I could tell, the genocide taking place in various places around the world. But do I know everything at play in the job of presidency? I do not. Sometimes there are times when the work of growth within your own heart and mind requires you call someone a viper. It’s that complex. And I sit with what I said then and know I opened something up within myself that needed it. And I know neither of them are vipers. They care.

(And if you want to get on with my main point, scroll to the last paragraph. I understand!)

At the very same time I utter a harsh rebuke, I am striving to see every human being on this planet with the eyes of love and hope. Love of our shared humanity and hope for our growing into truth and love as we weave our way into the stories of life. Yes, that love includes our favorite enemies. I want to always hold to a spark of hope that the worst out there will one day emerge free of the rule of all that would destroy and devour. At the same time, a number of them would likely only receive rebuke from me until I see change because the lives they’re devastating require it of my heart. This is what First Lady Michelle Obama meant when she said, “…we go high.” We hold to the good in all humanity.

We each have unique needs to assert, to support, to pull back and to ignore depending on where we are at any given point on our paths. Some of us may seem not to care about what many are screaming about. As a result, some folks want to declare those who are silent to be in agreement with bullies et. al. But are we going to see our own complexities and not see those of our fellow humans? I know that silence in the vicinity of turmoil or oppression is so very often, if not always, not agreement with bullies or “the enemy,” but confusion, exhaustion, trauma, ignorance and fear. Some folks are deeply into a work of healing and nothing else can take their time or attention. And they long for those who’re being oppressed to be free. But they just cannot give time to anything else. Silence can also be an awareness of one’s limits and a sensitivity to the causes one has committed to. And it can be about sensing the timing of when to speak up.

Given all these complexities, we often must choose a cause to devote our time to for seasons because there is that much need in our world. Some folks have so many things to tend to in their daily lives, they literally must prioritize the causes they feel deeply about so that the very point of life itself is not devoured by advocacy or fear of not supporting all who need support. You can advocate to the point of depriving yourself of your own humanity and losing sight of the needs of yourself and your loved ones to great detriment. But you will look very good to everyone else. What are you fighting for when you leave no time to love those around you? And with thoughtful strategy and intention, we can all pitch in where there is need. When more of us are in agreement about different causes, the burden is lessened. So, why not move with assurance that your needs are legitimate?

We also advocate by choosing to focus exclusively on our own lives and learning how to walk our talk and be there for those in our lives. Any time we honor our own value, we are honoring all value.

I believe we can and will all one day know that, just as this earth holds venomous creatures, she also holds butterflies and birds singing to the heavens in the same vicinity of what lies beneath. And as it is with the earth, so it is with the human. The hope we possess rests in a longing to see our lives ruled by a love and awareness of these polarities while we traverse a path up the middle, reaching sometimes into extremes as we weave the truth of all our value in love. We really don’t want the worst of our swamp creatures to decide what we do or say, do we?

So, the words we say empower or devour, inform or obscure, or, or, or…the possibilities are endless. What we desperately need is a world of people growing ever more aware that we have more than enough love to hold each other in faith that we will ultimately grow beyond any presumed failure of truth or justice or love. In other words, hopefully we can give people room to be who they are in love. And we do that by acknowledging that damning any one person for a thing s/he said (and yes, even what s/he did) way back when, serves none of us. It’s the pattern of the life itself and that life is still speaking, and we’ll know their truth by what they create in this world. Who knows, maybe if we hold the seemingly worst of us in love and faith for change while holding them accountable, our world will transform and truly new days will bloom beyond what seemed to be impossible wreckage.

The Minnesotans who sang from the streets, lifting their voices to ICE agents, telling them it’s okay to change, to see where you’re in the wrong, are an example of the truth that there is enough love to redeem us all and save our world from the forces seeking to destroy our humanity and to devour the work of love. The most extreme of us are literally in need of compassion along with accountability and you will find their wounds are what lead them. They don’t realize it, but their actions are weeping a call for healing and release from fear. But we can, by being sensitive to why we’re saying what we’re saying when we’re saying it, hear that call within ourselves and in the lives around us.

To many things there is a season, and knowing when and how to speak is a work in progress for everyone who gives a damn about life and love. I hope we can all cover each other in grace and love at every possible turn.

On with it…

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Material Commitment

Material commitment. Alexandria Ocasio-Cortez, while in Berlin, used the words, “material commitment” in the midst of several powerful assertions. Why does that excite me? It excites me because the material is where we show what we value. And we truly must create and nurture on the physical plane those truths that affirm and protect our value as a world of humans ready for love’s work.

Work. Material. Commitment.

If you look over at the piece of furniture to your left, your eyes see a material object, no doubt. But what your eyes don’t see is the reality equally real, equally present and that is what we cannot see but through a powerful microscope: all the movement that is the solid object still there to your left or your right. We could go so far as to call that movement we’re not able to see with our eyes, “spiritual,” if we want to do that. But we don’t have to do that in order to see that someone valued something and created an object as a result of that value. Our values birth urges, urges birth values, back and forth we go with a desire to create, to do, to make real. So, that object you see exists because someone felt an urge within to create a thing and a thing now is and the urge that prompted the creation is that which no microscope can reveal. And a microscope need not reveal the urge since the reveal is in the physically present molecular stuff created. Yet that urge is just as real as the jiving, vibrating molecular stuff of every object, and more significantly, every person the world over and every urge, every longing, every belief, every fear is just as real as the airplane flying overhead, as alive and significant as every bird singing on high and when we act in the energy of any urge, we are literally weaving that energy onto the physical plane. It’s as if our bodies are the needle or the hook, depending on your preferred maker’s instrument. And we weave each day, the energy we house within our beings. Though our weaving work may not be as obvious as a coffee table, airplane or lovely bird, our work is very real.

And sometimes without realizing it, as a result of our many feelings, desires and urges, along with our creations, we have made commitments. We find that somewhere along the way, we committed to beauty, to creating beauty. Or we committed to expressing truths. And we get to such commitments by way of a series of very human experiences. We explored possibilities and we became aware of what we require to live in this life as authentically as possible. Through such explorations we arrive at a sense of our values and we recognize the commitments required to protect and nurture those values. Some of us may not realize it, but we commit when we consistently act on what we value. So many of us do this day in and day out, we lose touch with the fact that much of what we do was birthed by a commitment. Our lives feel more habitual than intentional. We literally require times of stillness to reconnect with our values, with our commitments. And for those of us with a more global sense of who we are, as we focus on our commitments, we realize the times constrain us and insist our focus be on our value and on the rewards of committing to the absolutely beautiful value of every human being on this planet. It doesn’t look very hopeful these days. Our backs are to the wall, in a very real way. How will we make real in this world the fruit of our commitment to our value? We’ll get there by seeing that just as a carpenter has the power to create a world of beauty simply because s/he wants to, we, too, have that power with every effort we put forth in agreement with the boundless value of every creature on this planet. And it starts within the one heart, your heart here and now. And you, me, they, we cannot do it alone. We are asked to see, in this age, how connected we truly are and in that seeing we can be encouraged by the love shown on the streets of Minneapolis in defiance of hate and, as Alexandria Ocasio-Cortez said, in the cities like Berlin and so many others all over the world where people refuse hate and build from love.

Because her values compel her forward into life, into appointments and many crucial events, Alexandria Ocasio-Cortez is weaving the truth of our value through her words and her actions as she boards a plane and lands on the other side of the world. And as she speaks truth, insisting on all our value. We, each one, literally do the very same thing daily though we aren’t often aware. My prayer is this: that we awaken to the energy we weave and begin to ask ourselves how we might be wholly who we are in love so this world can birth the age to come, a time of love and peace and plenty for all. What are we weaving through time and space? Alexandria Ocasio-Cortez reminds us all that we create with every tick tock slice of time within the world we are placed and if we commit to a vision of love, we can create a beautiful world for us all.

So, calling all would be weavers of love…if you speak my language, you know what I’m saying here. Let’s not see our elected officials with the broad strokes of political partisanship. Let’s see them on a more molecular jive as they move their bodies through the timeline we all reside. Let’s see their actions, weigh the accumulation of their intentions and hold them in prayerful support that they be held by love, that they be led in truth and that we, too, be thus committed to the wellness of all humanity.

Alexandria Ocasio-Cortez wakens my heart to truths that fell into a slumber in the tides of some surreal life challenges. And I know she will continue to do this everywhere she goes because her heart is on fire. And I will say this to anyone who thinks they know she didn’t do a thing the “right” way or think she should’ve done thus and so or she did well and oh, or said this and that in such a way: her whole life is speaking and the message is undeniably authentic and life-giving. If you or I were judged by any who misunderstand us, we would be bereft of the love we must all realize materially and spiritually in our lives, a love that gives room for us to become and grow into all that love calls us to be and create. I would hope to be as courageous and consistent as Ocasio-Cortez.

Read the full quote below and ask yourself where you fit into this work of love.

“We all need to buckle up. That is the moment that we are in. But if there is any place that shows that good people can prevail over the horrors of inhumanity, it is Berlin. It is Berlin. And it is so many other places around the world that can be a front line to show that we can overcome and we can defeat fascism by a class-based solidarity that champions all of us. I think about this, I think about this, and I’ll end with this note, but I think about this very often because, of course, the universal health care systems in Europe are the envy of every American. And it is truly such a revolutionary environment that you all grow up in the universality of health care, because it really is a decision and an affirmative material commitment to everyone’s basic humanity, to human dignity. And to me, it is not a coincidence that universal health care systems across Europe were established in the wake after World War II. They are directly connected where you had all of this destruction, in all of this rubble that was built on a politics of persecution and division, but when we decided to move past that, we built material systems based on universality, affirming our human dignity. And I think it’s so important for us to recall those lessons for today as we confront many of the shadows of those similar movements.” Alexandria Ocasio-Cortez

Ocasio-Cortez is saying that, at the worst of times, a people responded to the devastation of war and hate by affirming value in love. And they did it politically. Amidst the rubble, the spiritual rubble. And we are, all of us, in a swirling whirlwind of rubble of every kind. We need to know ourselves in the center of the storm as the love we have been created to be and become, create and nurture. And we need to ask ourselves how intentionally we are living our love, and all that we claim to value as we go about our days.

On with it…

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