“Never allow anyone to be humiliated in your presence.” Elie Wiesel
Let me not do more than slam, hammer, pound
and send all the contents smashing against the ground,
the wall, glasses, books, whatever in the vicinity of this holy rage.
Let me not grind my teeth endlessly or linger too long
in the fantasy of obliterating the one who trampled innocence.
Call the gatekeepers, please.
Call the standard bearers, too.
Rouse the warriors against the wave of scurrying human cowardice
that reaches rapidly to blank out, redact accountability
and stroke, stroke, stroke the enablers.
Let me not be so done with children posing adulthood
so fury-blind that I alienate them every last one
in the fallout of the brutalization of one actual child.
Open our eyes to the beasts we pursue in the hopes to subdue,
subsume and subjugate, feeding our own inner monsters
while we weep under the light of the moon
wondering why our children have been devoured.
Stop the generational wreckage smash and crash
rolling through the fast lane in the here and now.
For once, end the long game, the one where the children pay
and pay, and pay for the violations of the fathers.
Keep us all sane, keep us all open to being better people
so the ones who’ve paid a price not their own,
can know safety in our presence.
Make our lives, our days, our minds, our hearts
and our actions a refuge from delusion and insanity.
Waken the dead, the walking dead
who thrive more in pretending love
than the doing of care, of forethought, of protection.
Wash over the blistering wounds made,
the whispering haunt and the innocence fade.
Conjure from the cracks a tree more resilient,
refusing that perpetual derision as it rolls downhill,
mocking how precious the sighs and pulse
of our children, our heritage, our hope.
Conjure creation’s cure, a resounding war cry,
calling from the heart of mother and father divine a raging justice,
insisting growth, smashing lies and building newness in the after.
Each step taken, every chant and cry,
every movement for justice,
every insistence on equal rights,
every standard and arm raised for safety,
for the end to brutality and racism at the hands of…
police, government, the system,
each one land home, right to the heart
of what brings true change, what sets aright
the system set in motion against humanity itself.
Revolutionize hope, radicalize grace.
Every effort met with heaven’s support,
earth’s nurturance and the flesh and blood strength
of all who embody truth and justice.
Each one held safely by love.
“’The unborn’ are a convenient group of people to advocate for. They never make demands of you; they are morally uncomplicated, unlike the incarcerated, addicted, or the chronically poor; they don’t resent your condescension or complain that you are not politically correct; unlike widows, they don’t ask you to question patriarchy; unlike orphans, they don’t need money, education, or childcare; unlike aliens, they don’t bring all that racial, cultural, and religious baggage that you dislike; they allow you to feel good about yourself without any work at creating or maintaining relationships; and when they are born, you can forget about them, because they cease to be unborn… You can love the unborn and advocate for them without substantially challenging your own wealth, power, or privilege, without re-imagining social structures, apologizing, or making reparations to anyone. They are, in short, the perfect people to love if you want to claim you love Jesus but actually dislike people who breathe.
Prisoners? Immigrants? The sick? The poor? Widows? Orphans? All the groups that are specifically mentioned in the Bible? They all get thrown under the bus for the unborn.”
“Even once the true cause of my disease is discovered, if we don’t change our institutions and our culture, we will do this again to another disease. Living with this illness has taught me that science and medicine are profoundly human endeavors. Doctors, scientists and policymakers are not immune to the same biases that affect all of us. We need to think in more nuanced ways about women’s health. Our immune systems are just as much a battleground for equality as the rest of our bodies. We need to listen to patients’ stories and we need to be wiling to say ‘I don’t know.’ ‘I don’t know’ is a beautiful thing. ‘I don’t know’ is where discovery starts. And if we can do that, if we can approach the great vastness of all that we do not know, and then rather than fear uncertainty, maybe we can greet it with a sense of wonder.” Jennifer Brea on CFS/ME and the ways the medical model can improve for all of us.
I so often wrestle with whether or not to express what CFS/ME does to my life, how it shapes the landscape of my mind, my will. More often, I choose to sparingly articulate how it impacts me, simply in the interest of sanity. But I find, as more and more people wake up to the truth of this disease, that it is becoming more empowering, less overwhelming to go ahead and speak up. The ignorance is melting away as people realize it’s not a psychological issue but a real assault on the body.
As Jennifer Brea experienced initially, so did I. Fever over 106. Pneumonia for the first time in my life. Early 20s. Never. The. Same. After my primary care physician sent me in many different directions seeking a diagnosis, we landed on the diagnosis of CFS. And the alienation began right there in my doc’s office, with her set of prejudices awaiting me like a box, a prison cell.
Brea’s TED talk speaks to so many of the issues confronted by those who walk this path. Her words, in their affirmation of the validity and impossibility of the struggle, bring balm to those who have suffered this illness for a long long time.