Divorce (And ME/CFS)

Finalized in 2025, but there could be confusion…

My blog has been around for ages now and throughout postings folks will encounter my mentioning of my “ex” and of being divorced. I did not officially divorce until 2025, but in my heart and mind, we were divorced since our marriage ended after years of heartache. We did separate for years. Then the economy being what it was and still is, and my battle with ME/CFS, along with the needs of our three children converged as the most defining considerations. After reflecting on what outcomes we needed to nurture, we realized we needed to move back under the same roof in order to launch our children successfully. We literally were unable to legally divorce until 2025, but we gave each other room to pursue other relationships should the opportunities arise.

When we separated, we both felt confident my illness would still give me room to work and move us along to a finalized divorce before too long. However, confidence does not cure chronic illness and my health took a nose-dive the likes of which cornered me into working from the home and limited the time I could invest even in working from the home. I went through the cycles all ME/CFS folk go through where I would establish a fairly reliable baseline of possible activity and then life would pull the rug out from under me and leave me without a baseline, clinging to the couch for weeks or months at a stretch. Divorce became an elusive though sure outcome.

ME/CFS, and any chronic illness, catapults folks into challenging and nearly impossible life situations like the one I reference here where divorce is delayed for, gulp, two decades. If you have relatives or friends suffering serious chronic illness, be there for them. See them. Affirm their challenges and do what you can to help carry the burden. Know, too, that simply “going on disability” is not often an option and has been particularly challenging for ME/CFS folks since it has taken the medical community decades and decades to simply begin to acknowledge ME/CFS as a very real and non-psychogenetic illness. What does this mean? Note the words used here: Acknowledgement of legitimacy has begun and there are still far more uninformed physicians than informed. Medical neglect devastates many of the ME/CFS population and reaches into the legal work of seeking rightful financial relief. Those deciding whether or not ME/CFS is legit enough to warrant disability benefits are influenced by those who still suffer the terrible and often willful ignorance that leads to the abandonment of millions suffering with this real and debilitating disease. So, if the medical community still needs to catch up, the legal professionals deciding disability benefits will often not legitimize the need either. Then there’s the whole issue of whether or not spousal support from divorce will provide just enough financial support to block all possibility of receiving disability. The standards are galling. Navigating the possibilities exhausts and discourages the already weary, and is often weathered without help from friends or family. Be the exception if you’re able to be and roll up your sleeves in commitment to understand, bear witness and be with those sidelined by any chronic illness. The impact of ME/CFS is insidious and extensive, isolating and obstructing lives to the point of often complete alienation. Resolving divorce and income needs with such considerations is tricky work.

Meanwhile, should you be one of those who notes the strange and seeming inconsistency of my mentioning being divorced years and years ago, and then finally declaring our actual move to legally do so in 2025, you’ve likely scratched your head in confusion. You should understand why now. Life challenges can be surreal, and though divorce can take place often times before the actual legal act, legal marital dissolution is a powerful, needful spiritual and physical work. Don’t tread lightly into protracted separation. If you can avoid the limbo of not quite married/not quite divorced without wrecking the well-being and housing of those involved, do it. But plenty of people must continue to live under the same roof due to financial impossibilities. If you’re one of those unfortunately trapped, my heart is with you. Hang in there and get help in any way you’re able to do so.

Prayer #3 (for protesters)

Each step taken, every chant and cry,
every movement for justice,
every insistence on equal rights,
every standard and arm raised for safety,
for the end to brutality and racism at the hands of…

police, government, the system,

each one land home, right to the heart
of what brings true change, what sets aright
the system set in motion against humanity itself.

Revolutionize hope, radicalize grace.

Every effort met with heaven’s support,
earth’s nurturance and the flesh and blood strength
of all who embody truth and justice.

Each one held safely by love.

Prayer #1 (For Michael)

May your whole body/soul/spirit shift in alliance with the well-being
of eternal and perpetual grace, renewal and wholeness.

May you breathe deeply into your worth and know the love that upholds your life
and has held you close all of your days, even when you least felt that comfort.

May you stretch your arms out wide, reaching far and further still out to places
you feel most inhibited, afraid to reach for fear of rejection, for fear of vulnerability,
for fear of your own beauty being more than you can contain.

May every corpuscle, muscle, vein, artery, organ, system,
neural impulse, heartbeat, rumble of your being vibe with the jive of clarity,
unobstructed, unhindered, blossoming wellness.

May you soak up the sun of healing.

May you know the love that upholds us all as a bliss-force flowing
through every fiber of your being
as you breathe in, breathe out,
breathe deeply the life force sustaining us all.

j. ruth kelly, 2020, all rights reserved

Profoundly Human Endeavors

“Even once the true cause of my disease is discovered, if we don’t change our institutions and our culture, we will do this again to another disease. Living with this illness has taught me that science and medicine are profoundly human endeavors. Doctors, scientists and policymakers are not immune to the same biases that affect all of us. We need to think in more nuanced ways about women’s health. Our immune systems are just as much a battleground for equality as the rest of our bodies. We need to listen to patients’ stories and we need to be wiling to say ‘I don’t know.’ ‘I don’t know’ is a beautiful thing. ‘I don’t know’ is where discovery starts. And if we can do that, if we can approach the great vastness of all that we do not know, and then rather than fear uncertainty, maybe we can greet it with a sense of wonder.” Jennifer Brea on CFS/ME and the ways the medical model can improve for all of us.

j. ruth kelly, all rights reserved
j. ruth kelly, all rights reserved

Myalgic Encephalomyelitis aka Alienation

I so often wrestle with whether or not to express what CFS/ME does to my life, how it shapes the landscape of my mind, my will. More often, I choose to sparingly articulate how it impacts me, simply in the interest of sanity. But I find, as more and more people wake up to the truth of this disease, that it is becoming more empowering, less overwhelming to go ahead and speak up. The ignorance is melting away as people realize it’s not a psychological issue but a real assault on the body.

As Jennifer Brea experienced initially, so did I. Fever over 106. Pneumonia for the first time in my life. Early 20s. Never. The. Same. After my primary care physician sent me in many different directions seeking a diagnosis, we landed on the diagnosis of CFS. And the alienation began right there in my doc’s office, with her set of prejudices awaiting me like a box, a prison cell.

Brea’s TED talk speaks to so many of the issues confronted by those who walk this path. Her words, in their affirmation of the validity and impossibility of the struggle, bring balm to those who have suffered this illness for a long long time.

With the Makers

I’m all done with notional condemnation,
nonsense posing “salvation”
suggesting pre-birth agendas and all the control
a robot might covet.

Take me to the truth, down to the bone of it.
Marry me to the wonder found in the midst of
all this chaos and randomness daring us all
to make meaning.

I see their meaning made in fear.
The meaning they make
spews the poison in their hearts,
the snare in their aid.

Take me far away from the righteous.
I want to live with the undone and undoing.
I want to dance with the makers and shake
every foundation lost to the mold of stagnation.

Deliver me to love, love in spite of it all,
love because of it all,
love morphing, rolling up sleeves
and shaping this mound of flesh into new and ancient songs.

j. ruth kelly, all rights reserved, 2015
j. ruth kelly, all rights reserved, 2015

*Pre-birth agendas and salvation are real forces and works ancient and new…but this poem isn’t focused on the mystical and mysterious, powerful and valid work hidden therein. It’s about freeing yourself from false faith.

Magnetic Resonance Imparting

Tenzin Choegyal’s singing, particularly with the Metta String Ensemble and particularly the Crane Nomad song reached into those places humming with a bit of futility, of loss collecting in dark corners of the soul. The timing was perfect, right before an MRI to see if I have MS, ALS, or some other crippling illness. I suspected it is the same battle I’ve fought for over 20 years but the concern shook me up. Choegyal’s voice pulls soul parts back from the edge of the abyss… beautiful healing… insta-weep and weep of the best kind of cleansing.

My only complaint is that he laughs at the symbolism of the crane, or, more specifically, the spiritual medicine. But I suspect he’s laughing at the thought of how strange he must sound to the western mind. The crane has been speaking to me already…nothing strange. Longevity. Good health…wings…moving on from dark times…

Own Your Life

This reaches me on several levels because, for one, it shows a man giving his body, his will, his time to the military. On some levels, this fact alone can be upsetting to me. I’m not anti-military or unappreciative of those who join the military. But these folks are giving their will and good health to agendas that can be corrupted and obscured by the military industrial complex’s greed and lust for power and control. It’s difficult to sit calmly with the potential carnage wreaked on their lives, their good health. So, I support the human, the person, but I look with skepticism and caution at the military otherwise. I know you can make choices that keep you out of harm’s way and put you on a track for massive success within and beyond the military. But access and privilege attach themselves to these possibilities as well, don’t they? Why can’t it be fair and obvious for every one choosing the military? And are they choosing or has life dragged them towards a capitulation? I could go on and on. Again, it’s the person I long to see free, healthy and prosperous.

I love what is expressed here about “The Secret” and about owning your life. And as one who longs to sprint again and who has some major challenges – not with an almost 300lb weight issue or injury from parachuting out of airplanes, but with the considerably daunting reality of CFS – this rendered me weepy and appreciative. So, Happy Memorial Day to those who find it meaningful. Let this be a memorial to the human spirit, the tenacity both in and out of corrupt agendas and into the ownership of our lives and our power.